I'm having a time of it right now. This past week or two has somehow been very trying for me. I'm tired. I'm inwardly stressed (out of my mind) wondering what's happening with Max's cancer. Is it shrinking? Is it stable? I know his markers (urine and blood) aren't showing any real changes for the worse, but will the fear - the wondering - ever go away?
I read Margo's post the other day (Sam Hutchison's Mom) about being on cloud 9 since his NED news. But then settling down on cloud 6, where the view is still fabulous, because she knows the truth of this cancer.
I'd love to be on cloud 6 with her. It's just so sad to think that even when your kid is NED (no evidence of disease) there is most likely an NB cell hiding out just waiting for a break.
Cloud 9 is therefore unattainable... until a true cure has been found.